Vanessa's Big Heart Foundation was established in honor of our baby girl Vanessa Katherine Dale who passed away on April 7, 2005 from Dilated Cardiomyopathy (a rare heart condition that continues to be the leading reason for heart transplants in children).
While our lives were turned completely inside out during this experience and we now have a void of a lost child to carry with us, we are determined to find the meaning and purpose of her having been in this world, or else we'll do a world of good in her name...while we seek the meaning and purpose.
The Foundation was established with three primary goals:
1. Fund Research:
To help fund the cardiomyopathy genetics clinic established by Texas Children’s Hospital of Houston, Texas. We are convinced that mapping and modeling of the genetic links to cardiomyopathy will lead to better diagnosis, treatment, and ultimately to a cure for this devastating condition.
2. Camp Pump-It-Up:
Texas Children’s Cardiology Clinic sponsors pediatric cardiomyopathy patients to a weekend summer camp each April where they can enjoy some of the “normalcies” of childhood. We feel it’s important to have a tangible goal that the Foundation Family can see and feel. We have pledged to provide the transportation to and from camp so that the anticipated 150 kids signed up every year will all be able to attend. With your help we’ll be able to continue this pledge for future years.
To support the Children’s Cardiomyopathy Foundation (CCF). CCF’s primary goal is to provide seed funding for research into pediatric cardiomyopathy causes and cures; however, we found it to be the premier source for support and information in dealing with pediatric cardiomyopathy. Currently there are more than 120 families registered with CCF, where they provide unbelievable amount of information and support to help similar families cope.
In Memory of
Vanessa Katherine Dale
12/1/04 - 4/7/04